Don't wanna bring you down. I'm sick of posting these sorts of entries.

[changeling]

Shithouse day.

A complete fuckup with the trams meant I couldn't get to the post office in my lunch hour to send my paychecks in to Drake, so I'm currently running at about -$100 (this is not including the thou I've put away for the US, so it's really at about $900. But you understand that.)

Then another fuckup with the public transport system meant that I was forty minutes late for my ultrasound employment. FORTY FUCKING MINUTES. Thanks a bundle, M-otherfucking Trains. That was a whole bundle of stress I could do without.

I have another doctor's appointment tomorrow, with my GP, to discuss my results. I wish I could believe that they'll find something, but I don't think they will. Maybe they'll send me for more tests. That'll be fun!

This whole hospital-test nonsense has so far set me back in excess of $450. Add this to the fact that I missed work, causing me to lose around $250 in pay (the two days I was off sick, and having to miss the second half of work today for the ultrasound), and I'm $700 down. Woohoo.

Aaaand now my throat hurts. This is an utter shitheap.

To recap for those who didn't click through: I am currently very, very poor, I'm still sick, and I'm not happy about either event.

Comments

[rhakylia.livejournal.com]

*hugs! big hugs*

another friend of mine is really sick and has been in and out of hospitals for the past month having tests done...now they reckon she's got arthistis (sp)of some sort in her blood! But they won't know till she goes to the specialists....

it sucks that all my friends have to run around in circles!

[delirieuse.livejournal.com]

Oh, fucking joy. *wince*

Here's hoping that i don't have something serious.

[pinque.livejournal.com]

hmm.. arthritis specifically means inflamation of the joint.. so I'm thinking they are checking for Rheumatoid factor in her blood?

And there are other types of Artritis of course, but they'll be checking her blood for signs of it rather than the disease in her blood.

I'm hoping it's not. I have Rheumatoid Arthritis and it's a huge thing to have to deal with all of a sudden. No two ways about it your life is most certainly not the same.

And she'll need a friend to understand that and let her know that they will be there and will try to learn as much about what she's going through as they can.

If she does, and she feels it's ok, I can let her know how i'm doing into my 3rd year with the disease.

Life does go on, different and with a lot of compromise, but it's not over:)

[rhakylia.livejournal.com]

the doctor's have told her it's highly likely that it's "Rheumatoid" in her blood, but they need to confirm it and tell her how to deal with it...she's in a shit load of pain that's about all I know...she hasn't really let me in that much about it all. I think she's scared so I'm just trying to be there when she needs me.

[pinque.livejournal.com]

Oh hell.

Yeah, just be there for her, it's so so devestating.

I know I already knew about it from Uni when I did an immunity paper. And then when I did some more reading, it got to the point where i didn't want to read any more.

She certainly has my deepest sympathies, and empathy.

God, I got depressed reading about others in as much pain as me, I got depressed reading about others who did better than me..

One thing though, with a diagnosis, and definate Rf they can now go about getting her the medication she needs.

it's now a matter of finding what works for her. If she can hang in there it will get better. She's in her initial flare, which will abate, I have no idea how long, mine lasted 6 months, then the meds will start working.

And subsequent flares shouldn't be as bad. Different but not worse.

It took 18 months to find the combination that worked for me, and it wasn't all intense pain. But it should take less time for your friend as the US has access to the newer biologicals that I can't really get to.

And the thing is some peopel respond better to the older drugs anyway. Gold injections being one.

I don't know how much she'll want to know just now, but if she does have access to the net, and she does want to know how someone copes with it, I'm going to be here at lj for some time:)

[rhakylia.livejournal.com]

thanks for the offer, i might wait before springing it on her though. I think she's pretty much in shock...

I know absolutely nothing about the condition all I know is she's one of the brightest bubbly active people I know and the thought that her pain is holding her back sucks!

oh and we're in australia.

[pinque.livejournal.com]

Ahh.. I was wondering actully;) I think in OZ you can get Remicade and Enbrel.. oh wait.. maybe not Enbrel. I'm sure I read about a woman who couldn't come back to OZ for that reason.

Absolutely understandable. I howled like some animal for so long when I first got the news.

I found visitors extremely welcome once the initial shock wore off.


As long as no one directly asked me how I was doing, but I knew they cared, I was able to keep level and stay positive.

[billradish.livejournal.com]

Ack! *snuggles* Wishing you much love and luck...sounds like you need it. =( .

[delirieuse.livejournal.com]

Thanks. *snuffles* I do.

[billradish.livejournal.com]

You ever need an ear (er, eye?) to rant or whine at, consider mine open. Kay? You don't have to use it, but know it's there if you ever want or need it.

[delirieuse.livejournal.com]

Thanks. I will. *hugs*

[semplice.livejournal.com]

And because I care...
On the bright side, you still have a vat of cool maturity. *nod*

[pinque.livejournal.com]

Due you aren't bringing me down. Hell I know what it's like being there not knowing what the hell is happening and hurting.

[dejaspirit.livejournal.com]

*hugs* I'm sorry , sweetie. But this will pass. Just remember that.

[delirieuse.livejournal.com]

Thanks. :)

[buhfly.livejournal.com]

*snuggles*

[scott-wells.livejournal.com]

Hang in there.

I'll try burning the healing incense for you again. :)

[bekscilla.livejournal.com]

*huuuuuuuuugs* gotta love public transport :(

feel better.